The end

We met with the doctor again today about Gracie. He wanted us to make some decisions and discuss the options for Gracie. He said that he didn't feel like the lung lobectomy had helped a lot according to the x-rays looking worse over the last couple of days. He said we could take Gracie back to the cath lab and check pressures again in the lungs, then probably do a bonch to see a better picture in the lungs, but then he suspected that Gracie would probably need to have a trech put in, as well as a g-tube. With all these things, Gracie would probably still be on the ventilator long term even if she were able to go home.

We asked about her quality of life and even though it is unknown for sure, being on a vent wouldn't allow her to be a normal little girl. With all the facts, Todd and I decided that the best thing for Gracie is to let her go. We know that we have given Gracie every chance possible and feel at peace with our decision. We know that she will have eternal life in Heaven with God and Jesus and will be better off than any of us here on earth. It has been very hard and emotional to make that decision because of course I want to hold my little baby forever, but that just means we will have to work that much harder to get to Heaven ourselves.

Our family, friends, and nurses has all had a chance to say goodbye and give Gracie kisses. We are going to start this tomorrow morning. You all have been such a blessing to us and Gracie has touched the lives of so many people. She is a fighter! We all know that or she and I would not be here the night she was born. So many people are praying and people we do not even know have touched our lives and we have lifetime friends because of Gracie.

Our family loves each and every one of you!